Vegard's life with CDKL5

Vegard is a 7 year old boy from Norway. From infancy Vegard has suffered from Infantile Spasms/West Syndrome. The fight for finding out ...

It did take some time, but finally, the day came - Vegard's right hip was put back where it belongs, after 1 1/2 year of being luxated. ...

The other day, I emptied our camera, and I found a little video I had shot of Vegard, in February 2010. Just see how strong he can be, when ...

We wished so dearly to have two children close in age. We dreamt of the joy they would have in each other. We wished for two boys and...

It’s a quarter to six in the morning – the alarm clock sets off - my husband is off to work. 6 am – hubby is out of the door – lays home li...

Little brother is about to do his exercises. Little brother is soon to be 14 months - and he is to do his exercises - exercise moving his...

Vegard has no will povered movements. He can not hold his head up for a long time, he can hardly lift his head from the floor when lying on ...