SSE - The Special Hospital for Epilepsy

In September 2005 Vegard was admitted for the first time to SSE, which then was the special hospital for Epilepsy, and which now is a part of Rikshospitalet, the main hospital of Norway. From this day on, it was Vegard’s doctor at SSE who controlled all of Vegard’s treatment for epilepsy, and during the later years it has also been the doctor at SSE who have taken care of a number of other problems as well.

They can not perform miracles at SSE, but after all, it is there the expertise on epilepsy in Norway is gathered. We have had a large amount of help, support and understanding from the doctors and staff there.

When Vegard first met them, in September 2005, he was on a medication of Orfiril and Fenemal, which had replaced the disastrous Rivotril. He was a small, undernourished child. The slightest bug sent him right to hospital, he had problems with eating and he cried a lot. He also showed signs of not wanting to be touched. He was still very much bothered with slime in his lunges, and had to have breathing medicines several times a day.

The mediaction has been altered and altered again – in a vain attempt to gain control of Vegard’s seizures. Topimax was added to the combination of Orfiril and Fenemal. They have also tried to give him Frisium, and then Apodorm/Nitrazepam, but nothing seemed to work. In the end Vegard was put on a combination of Keppra and Topimax, which he is still on today.


Vegard and mummy at his first video telemetry - August 2005


Mummy's little Teletubbie - June 2009